Sjögrens Syndrome? Home
Where to find help

First contact your local health centre, physician, eye-specialist or dentist. They can help you establish contact with nearest rheumatological department with knowledge about Sjögren´s Syndrome.

In Sweden, The Swedish Sjögren´s Syndrome Association has good co-operation with: Sjögren´s Syndrome Research Centre SSRC.

Advice to patients considering consultation
If you as a patient plan to have a consultation at SSRC.

What are the costs?
A consultation programme to verify Sjögren´s Syndrome can usually be performed within 2-3 days. A price of around SEK 2200 / day (2001) should be expected. If overnight accommodation is necessary this can be arranged at a nearby hotel.

Other physicians with special interest in Sjögren´s Syndrome and related diseases

Almqvist, Heléne, Dr. Med. Sc., Dentist
Dr. Med. Sc., Leg.tandläkare
Nackatandläkarna
Romansv. 10, plan 5

SE-131 40 NACKA
Sweden
Fax: +46-8 718 59 02

Bengtsson, Ann, Överläkare
Reumakliniken
Universitetssjukhuset i Linköping
SE-581 85 LINKÖPING
Tel +46-13 22 20 00
Eriksson, Per, Med dr. Överläkare
Reumakliniken och Njurmedicinsk klinik
Universitetssjukhuset i Linköping
SE-581 85 LINKÖPING
Tel +46-13 22 20 00
Hedqvist, Bo, Ophthalmologist
Ögonspegeln AB
Torggatan 2
442 32 Kungälv
tel: 0303-148 40
www.ogonspegeln.se
Henricsson, Vincent, DDS, PhD
Head of Oral Surgery Clinic
Central Hospital
SE-351 85 VÄXJÖ
Fax: +46-470 882 90
Johnson, Gunilla, Dentist
Oral faculty
Box 4064
SE-141 04 HUDDINGE
Fax: +46-8 746 70 81
email: gunilla.johnson@ofta.ki.se
Kjellberg, Kristina, Ophthalmologist
Synvårdsmott.
Atthundafältet 6
SE-183 36 TÄBY
Fax: +46-8 792 49 40
Manthorpe, Rolf, Professor
Specialist within Rheumatology & Internal Medicine with special knowledge concerning Sjögren's Syndrome and its differential diagnosis
The House Doctors
Jägersrovägen 80
SE-212 37 Malmö
Sweden
Tel: +46 40 22 92 12
Fax: +46 40 94 38 38
Gudbjörnsson, Björn, Head of Department of Medicine
Regional Hospital
Akureyri
Iceland
E-mail: bjorng@fsa.is

International physicians/institutes with special interest in Sjögren´s Syndrome


Overlæge Tove Manthorpe, Gynækologisk & Obstetrisk afdelning, Vestsjællands Amts Sygehus i Slagelse, DK-4200 Slagelse, Danmark.

 

Dr. P. A. Ostumi, M. D.
Catedra e Divisione di Rematologia
Istituto di Medicina Interna
Univ. di Padova
Via Glustiniani 2
I-35 128 PADOVA
Italy
Fax: +39-49-8212191
www.sjogren.org
Information only in Italian.

Patients with the diagnosis of primary or secondary SS are recommended to join as members in the nearest patient organisation. Usually the patient organisations issue regular Journals as well as arranging meetings.

Information about the Swedish Sjögren´s Syndrome Association:

Swedish Sjögren´s Syndrome Association, Box 147, SE-233 23 SVEDALA,Sweden
Tel: +46-40 97 79 55, Fax: +46-46 98 08 80 E-mail: harry@sjogrensyndrom.se

Other European Patient Associations with/without internet addresses:

Denmark: Gigtforeningen, Hauchsvej 14, DK-1825 FREDRIKSBERG, Tel: +45 31 31 12 13

Norway: Kompetencesenter for Sjögrens Syndrome, att. Professor Hans Jacob Haga, Reumatologisk afd, Haugelands Sykehus, N-5021 BERGEN, Tel: +47 55 97 54 00, Fax: +47 55 97 49 70

Finland: Patientföreningen Sjögren´s Syndrome, c/o Ann-Marie Rautovikta, Kauppakatu 1A, FIN-601 00 SEINÄJOKI. http://www.kolumbus.fi/sjogrenin.syndrooma/

Gastrolab, Vasa. www.gastrolab.net

Italy: Azzione Nazionale Sindrome di Sjögren. http://www.sjogren.it

The Netherlands: Nationale Sjögren-patienten Vereniging, Postbus 4, NL-3980 CA BUNNIK. http://www.nvsp.nl

France: Francaise du Gougerot Sjögren, 19 rue Roger Salengro, F-92120 MONTROUGE.
http://www.afgs-syndromes-secs.org

United Kingdom: Britain Sjögren´s Syndrome Association (BSSA). BSSA, Unit 1, Manor Workshops, West End, Nailsea, Bristol, BS48 4DD, Great Britain.
http://www.bssa.uk.net/

Germany: http://www.sjoegren-erkrankung.de

Some non-European Patient Associations

JAPAN
E-mail: sussugai@po.infosphere.or.jp
http://www.fujita-hu.ac.jp/~ktorikai/sjs.html

USA
The Sjogren´s Syndrome Foundation Inc., SSF, New York, USA
8120 Woodmount Ave., Suite 530, Bethesda, MD 20814-1427, USA.
Tel: +1 301 718 0300
http://www.sjogrens.com
email: ssf@sjogrens.org

Dry org. International resources for Sjogren's Syndrome. http://www dry.org.welcome.html

CANADA
Canadian Sjögren's Syndrome Association

ARGENTINA
http://www.drwebsa.com.ar/assa/presen.htm

BRASILIEN
http://www.lagrima-brasil.org.br/portugues/index.asp (Portuguese)

http://www.lagrima-brasil.org.br/espanol/index.htm (Spanish)

New Zealand
http://www.sjogrensnewzealand.co.nz/

Australien
http://www.lupusnsw.org.au/sjogrens.html#top

Tasmania
http://users.bigpond.net.au/lupustas/Sjogrens.html

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